Transition into adult autism services: a 90-day mobilisation approach
Transition into adult autism services is rarely a single event. It is a managed change process that needs clear ownership, reliable timescales, and early stabilisation. When transition is treated as “handover paperwork”, the outcome is often a cliff-edge: routines collapse, families escalate, school or placement breaks down, and crisis pathways become the entry point. This article sets out a practical 90-day mobilisation approach within assessment, eligibility and transition into adult services, and explains how transition success depends on coherent service models and care pathways rather than ad hoc responses.
Why transition fails: the predictable patterns
Most transition failures are not caused by “complexity” alone. They are caused by predictable system issues:
- Unclear accountability (who owns the plan, who holds risk, who updates family).
- Late assessment (adult eligibility considered too close to the 18th birthday).
- Support that changes too much at once (new staff, new routine, new location, new expectations).
- Reasonable adjustments missed (transition meetings run in inaccessible ways).
- Risk not managed early (crisis planning starts after deterioration).
A 90-day approach works because it forces the provider to move from “handover” to “mobilisation”: what will happen in week 1, week 2, and month 3, and how will you prove it is working?
The 90-day transition model: phases and outputs
Phase 1 (Weeks 1–4): clarify, assess, stabilise
- Confirm lead professional and single point of contact.
- Agree communication method and meeting adjustments.
- Complete/refresh functional profile and risk profile.
- Create a short interim support plan that prevents escalation.
Phase 2 (Weeks 5–8): build routine, test support assumptions
- Introduce adult support staff gradually with predictable scheduling.
- Trial community access, travel, and daily living routines in small steps.
- Confirm what support reduces distress and what increases it.
Phase 3 (Weeks 9–12): lock in governance, outcomes, and contingency
- Agree outcomes linked to assessed needs (not generic “confidence improved”).
- Confirm crisis/escalation plan and responsibilities.
- Complete quality checks and management sign-off on readiness.
Operational example 1: preventing placement breakdown at 18
Context: A young autistic person in specialist education is due to leave at 18. The family is anxious, and the person becomes distressed when routines are uncertain. Adult placement options are being discussed late and informally.
Support approach: The provider appoints a transition lead and starts Phase 1 immediately. Assessment prioritises routine, triggers, communication methods, and what “good days” look like. Risk assessment focuses on escalation triggers: uncertainty, staff changes, and travel disruption.
Day-to-day delivery detail: Adult staff begin short, weekly visits at the same time and location, using an agenda shared in advance. The provider builds a “next steps” visual timeline and rehearses adult routines (travel, arrival, quiet space, planned activity). The family receives a weekly update at an agreed time via their preferred channel.
How effectiveness is evidenced: The provider tracks attendance, distress incidents during transition sessions, and completion of routine milestones. Family confidence is recorded using a simple scale and reviewed weekly. This evidence supports both eligibility and readiness decisions.
Operational example 2: transition from inpatient setting into adult community support
Context: An autistic adult has spent several months in a mental health inpatient setting. Discharge is planned, but the person struggles with uncertainty and becomes distressed when professionals change plans.
Support approach: The provider aligns discharge planning with Phase 1 and Phase 2 outputs: consistent point of contact, predictable scheduling, and early environmental planning (sensory needs, quiet space, routine).
Day-to-day delivery detail: Before discharge, the future support team completes two structured ward visits, using the person’s preferred communication method. A week-by-week plan is produced covering first meals, medication prompts if applicable, appointments, and community access. Staff agree a consistent language approach to reduce confusion (same words, same plan format). A crisis plan is written in accessible format, including early signs and preferred de-escalation strategies.
How effectiveness is evidenced: The provider records incidents, use of PRN (if relevant), attendance at planned activities post-discharge, and crisis contacts. The plan is reviewed weekly for the first month to demonstrate active governance and adaptation.
Operational example 3: transition where housing is the critical risk
Context: A 19-year-old autistic person is leaving the family home due to relationship breakdown. Housing is uncertain. Risk of homelessness and exploitation is high.
Support approach: Phase 1 focuses on stabilisation and risk containment: interim support, liaison with housing, and clear responsibilities for safeguarding and escalation. The assessment captures what environments are tolerable and what triggers distress.
Day-to-day delivery detail: The provider sets up daily brief check-ins (text-based where appropriate), a consistent safe place plan, and a “what to do if” crisis sequence. Staff accompany the person to housing appointments and support document completion using accessible formats. Practical routines are established early (food, sleep, budgeting prompts). Safeguarding links are formalised with named contacts and response times.
How effectiveness is evidenced: The provider tracks missed appointments, housing progress milestones, safeguarding contacts, and the person’s stability indicators (sleep, attendance, distress rating). Evidence shows proactive risk management rather than reactive crisis response.
Commissioner expectation
Commissioners will expect transition to be planned, timely, and risk-managed, with clarity on roles and escalation. In practice they look for: early engagement (not last-minute), a documented transition plan with milestones, evidence of reasonable adjustments, and a clear route for resolving delays or disputes. Commissioners will also expect continuity: the person should not experience a service cliff-edge because the system failed to coordinate.
Regulator and inspector expectation (CQC)
CQC will expect people to experience safe, person-centred transitions, with continuity, choice, and rights-respecting practice. Inspectors will look for: involvement of the person and those important to them; accessible information; risk enablement rather than blanket restrictions; and provider governance (supervision, quality checks, incident learning). Transition plans that exist only “on paper” are usually exposed by instability, complaints, and safeguarding activity.
Governance and assurance: how providers make transition reliable
- Named transition lead and single point of contact for families and partners.
- Transition timetable with minimum standards (e.g., first adult meeting by X weeks before transfer).
- Readiness sign-off for higher-risk transitions, including contingency planning.
- Weekly review during the first month post-transfer for complex cases.
- Evidence pack linking assessed needs to routines, adjustments, and outcomes.
What “good” looks like
Good transition is visible in three places: the person’s stability (routine and reduced distress), the partner experience (clear roles and timely updates), and the provider record (auditable decisions and governance). A 90-day approach works because it treats transition as a controlled mobilisation with clear outputs, rather than an administrative handover.